Lilian Flowers of McAllen is selected as a Teens Speak Up! National youth advocacy leader by the Epilepsy Foundation National Office in Landover, MD. Miss Flowers was selected to represent persons living with epilepsy in Texas and will be traveling to Washington, D.C., April 28-30, 2019 to tell lawmakers about her experiences of living with epilepsy.
Lily, her family, and advocates from the Epilepsy Foundation Central & South Texas are planning to meet with staff from Congressman Vincente Gonzalez office as well as legislative aides from the offices of Senator Ted Cruz, and Senator John Cornyn. The message from youth is to continue funding for the Centers for Disease Control & Prevention’s Epilepsy Program which has helped to train school nurses, EMS, and law enforcement personnel. These trainings focus on appropriate measures to take when someone is having a seizure to prevent harm from improper care, as well as treatments, and psychosocial issues. CDC funding has helped to teach thousands of teens in high schools and middle schools across the nation about epilepsy, reducing stigma for teens living with epilepsy. In Texas approximately 1.8% of the population is affected by epilepsy.
Lily was diagnosed with epilepsy at the age of 6. She is currently a 7th grader at Homer J. Morris Middle School where she participates in Theater and loves social studies. She enjoys camping, horseback riding, piano and baseball. She is honored to represent not only her community, but all youth living with epilepsy in Texas. Lily states “I hope that one day, there will be an end to epilepsy.”
For more information about epilepsy/seizures or the Teens Speak Up! program, contact the Epilepsy Foundation Central & South Texas at or on the web at www.efcst.org.