Family Faces Formula Nightmare

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Wednesday, February 6, 2013 - 1:24pm

Boy with rare medical condition has adverse reactions to the only food he can digest.

A Florida toddler has a rare disorder that only allows him to eat one specific food.

His family now says the recipe to that food has changed, and they're worried he may starve.

On Tuesday a representative from the company that makes the food met with the Gonzalez family to try and offer them a helping hand, but they still don't have a solution and they're worried young Michael could die.

He suffers from a condition called Food Protein Induced Entercolitis Syndrome - also called F-PIES for short.

For Michael's mom, Jennifer, it translates to long nights.

"Vomiting, severe pain, then within the next 12 hours it's diarrhea to the point he becomes severely dehydrated and lethargic," said Jennifer Gonzalez

Doctors say the condition normally goes away by the time kids turn Michael's age - making his case, like the disorder itself, somewhat of a mystery.

"The natural history of this disorder is still not known completely," explained Dr. Virane Weerasooriya, a pediatric gastroenterologist

Read more: http://bit.ly/WxT62s

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